How to Allow Your Patients to Participate in Our Surveys


Charles Runels: So let’s talk about how to put people, your patients into our surveys. First of all, why would you want to do this? Well, if we intend to advance the science, obviously we need to do more clinical trials. We have two under way, but it will help us design those future trials if we have a lot of survey data. And this is not [double n 00:01:34] placebo controlled study for sure, but there’s nothing to sneeze at when you have, if we have thousands of data points which we could easily do and it’s prospective data.

This could be very helpful in designing our next clinical trials that are double n placebo controlled, so that we’re more likely to get a positive and helpful result or, rule out what’s not helpful. You’ll see our surveys include questions about which PRP kit did you use? We’ll know which specialties we’re doing, how long they’ve been doing it, and open ended questions that might help us discover things we’re not currently aware of.

Also, of course, the fact that you’re participating in the survey indicates to your patients what you are, which is a concerned and thoughtful and science-minded provider, so putting them into the survey, or asking to put them into the survey lets them know that you’re participating in a scientific endeavor. This is again, not double n placebo, but it’s prospective survey data which we can do.

By doing this, we’ll also put an icon by your name. I’ll show you what that would look like so if you go to for example, let’s see, we’ll go to and if you click on “find provider,” find certified providers, so when you click on that you’ll see that there’s an icon, a little ribbon that indicates that you are helping us with our research. People who are looking for a provider and they see that, and you can see, this is the legend that indicates to patients what these different things mean. This means you have radio frequency, this means you have laser in your office, this means you want to treat lichen sclerosus and if you want one of these icons by your name, just send us an email and see.

So by putting this little ribbon thing by your name, it indicates that you were putting people in our survey and you can see most of our providers are not. So it would give you a way of distinguishing your practice.

Okay, so hopefully everybody will help us with that. I thought about making it mandatory that everyone help us with that, but I’m hoping that we’ll just voluntarily do this. When you put five people in the survey, then we put that by your name.

So why would you not want to do this? There’s some concern about privacy. I want to show that we use Survey Monkey and Survey Monkey is a very respectable software that allows us to do this double password protected and HIPAA compliant. And then even to put someone in and the other thing is we don’t ask people for their name and we don’t, but we do ask for their initials, the provider’s name and the day they saw that provider.

The provider could backtrack it and figure out who the person was should there be something interesting either positive or negative, the provider could contact that person. But we don’t intend to share that data unless there’s a need. So the person gets a text message and the way you make that legal is, I’ll show you. So here’s how you put people in the survey. You go to, for O-Shot, you go to and then you log in. Now your log in page will look different than this. I’m coming through the back side, but when you log in, you’ll see … I’ll show you. You’ll be on our directory. And when you get to the dashboard, this is what you should see after you log in.

By the way, pay attention to this, because lots of good information we post updates to everything over here. This is how to do the procedure which most of you have seen. If you have questions, here and here are good places to go post them. But go here for the patient survey. Then, and you could literally give someone on your staff if you wanted, access to this, but try to make it one person so not too many people are logging in. And you have control and accountability of who that person is.

So the other reason you may not want to do this, one is privacy which I’m showing you, to put someone in you have to be able to log in, so when you get here you put this is a little ten minute explanation for how to do it. How to enter people into the survey. Here’s some nice questions that one of our gynecologists had that I thought were thoughtful, so I put a recording of that. And then, this is what you would want, preferably the patient, to enter themselves into your iPhone, with your iPad, so then putting their cell phone number here is what gives you legal permission to text them.

Now, if we put the email in here, that’s helpful for us to contact them, but that email often gets grabbed by spam filters, so we found the best way to survey them is by text message. Then, here’s where we get the up front demographic data that helps us figure out who’s doing best and that sort of thing. You put the provider’s name, how long the provider’s been doing the procedure. It’s all drop down menus. Which PRP kit did you use and did you activate it and with what? And so it’s very quick, less than five minutes. But that’s the other thing. I know five minutes is an eternity when you have people stacked on top of each other waiting to see you and the phone’s ringing with six lines. Understand this can be a nuisance.

Try to set yourself a physical reminder, something that reminds you of the survey in your exam room and, or on the chart, then whenever someone does an O-Shot, fill this out or have your staff fill it out, it’s very quick. Then you’re done.

Then we will collect the survey and I’ll show you what it looks like on the Priapus Shot website in a second. For some reason we’re getting a lot more surveys with O-Shot than for Priapus Shot. But once you do that, then we send them a personal text message and they still don’t fill it out. Their data is not stored on my website, it’s not stored on their phone, it’s not stored on your website, because we don’t want anything being hacked. Their name is not stored anywhere. So to figure out who they are, they would have to crack the code if someone actually somehow managed to crack into this HIPAA compliant website, where it’s stored on Survey Monkey, they still wouldn’t be able to figure out who the person was without cracking their medical records because it’s only listed by initials and date of birth, and date of visit.

So they would have to crack into your medical records, even if they cracked into our survey data to be able to figure out who this person is. So it’s triple-protected, because they have to go through two password-protected websites to get the information and then crack into your medical records to figure out who that person was. So this is very, very triple HIPAA compliant survey.

They get a text message and then that takes them to the female sexual distress scale and open ended questions on the female side and erectile dysfunction scale and open ended questions on the male side. So here’s what it looks like on the Priapus Shot side. So when you log in, you’ll be looking at this, you go to patient survey and then there’s the instructions. Again you have the patient fill this out, have them put their own cell phone number into your iPhone, your iPad or whoever you’re collecting that data and then that tells them you’ll be sending them a text message. Make sure they know that their data, how privately it’s protected, then again did they sign a consent form? And some basic demographic data which PRP kit did you use?

This is the only thing that might take a little time, put what medications they’re on, from testosterone are they seeing a sex therapist, things that will help us determine what variables might make our shot, because sometimes this procedure is crazy, crazy, crazy effective and sometime it isn’t. So, part of the challenge is to decide how to make the procedure better and another part of the challenge is to decide how to better choose the people for whom this procedure will help and those it will not.

I hope you’ll participate. Again, if you do this, we put that little icon by your name so that people can identify you as someone participating in our research and try to reward you with more phone calls. I hope this is helpful. Please contact us if we can help you further.

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